FAQs (Frequently Asked Questions)

What is USACFA?
USACFA (pronounced - you-sak-fa) is the United States Adult Cystic Fibrosis Association, Inc. USACFA was formed to provide a source of information and education for adults who have CF - regarding the basis, nature and progression of CF, the latest treatments and research to fight CF, and to assist in the psycho-social aspects of coping with CF on a day-to-day basis. USACFA provides a network and a forum for communication among adults who have CF, their families and medical professionals. USACFA publishes CF Roundtable.

Who runs USACFA?
USACFA is a non-profit corporation with no paid employees. It is governed by a Board of Directors, all of whom are adults who have CF and volunteer their time. It is not affiliated with any other organization.

Where is the USACFA office?
USACFA is operated out of the homes of the Members of the Board of Directors. We have no corporate offices. Our official address is PO Box 1618, Gresham, OR 97030-0519

Where does USACFA get its money?
Most of the money that USACFA has comes from the readers. We receive grants from medical companies. We get no funds from the Government or from any other group.

What is CF Roundtable?
CF Roundtable is a newsletter for adults who have CF. It is published four times each year. Most articles in CF Roundtable are written by adults who have CF.

Does CF Roundtable accept advertising?
There is no advertising in CF Roundtable. Corporations can make donations or grants to USACFA and they will receive recognition in the newsletter. All donations are greatly appreciated.

How can I get an article printed in CF Roundtable?
Type or hand-print your submission, using a plain font, not script, and please double-space your article. Mail it to CF Roundtable, PO Box 1618, Gresham, OR 97030-0519. Or email it to cfroundtable@usacfa.org or fax it to (503) 669-3561. Please send a recent photograph of yourself. All photos will be returned.

What is a Focus topic?
A Focus topic is the main theme for a particular CF Roundtable. There is a different Focus topic for each issue of CF Roundtable.

Will CF Roundtable print articles written by people who do not have CF?
It is policy that articles written by adults who have CF get first printing priority. Articles by others are printed as space allows.

How can I subscribe to CF Roundtable?
There is a subscription form in CF Roundtable. Complete that form and mail it in. There is also a subscription form on the web site which you can print, fill out and mail in.

How can I tell when it is time to renew my subscription to CF Roundtable?
We do not send out renewal notices. Your address label shows the renewal date for your subscription next to your name.

Do I have to fill out a subscription form every year?
Yes, we need a completed subscription form for each subscriber every year.

Do I have to send money with my renewal?
We request a donation of $10 per year per individual subscription, $20 (U.S. funds only) per year for addresses outside the USA, and $25 per year for institutions, but CF Roundtable is always free to those who are unable to make a donation.

Does USACFA share my name and personal information?
No, USACFA does not give, rent, or sell any information about our subscribers to anyone.

If I make a donation to USACFA can I deduct it on my taxes?
USACFA is a 501(c)(3) non-profit, tax exempt organization. All donations that exceed the value of goods received are tax deductible. (The real value of CF Roundtable is $10 per year.)