CFRI
22st Annual Educational Conference
The Power of Possibilities:
Growing Stronger and Living Longer with CF
Sofitel San Francisco Bay, Redwood City, CA
July 31 - August 2, 2009
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Call CFRI for our unbelievable room rates
Cystic Fibrosis Research, Inc.
650-404-9975 • cfri@cfri.org • www.cfri.org
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Among the Guest Speakers:
"Cystic Fibrosis: The Future Begins Now"
Jeff Wagener, MD, University of Colorado School of Medicine, Denver, CO
"A Swedish Care Model: What We Can Learn”
Birgitta Strandvik, MD, PhD, Göteborg University. Göteborg, Sweden
“Clinical Research Update: Keeping Up with New CF Treatments” Mark Dovey, MD, St. Christopher Hospital Philadelphia, PA
“New Findings to Address Tough Psychosocial Challenges in CF” Alexandra Quittner, PhD, University of Miami, FL
“Sex Hormones: How They Play A Role in CF Health” Marcia Katz, MD, Baylor College of Medicine, Houston, TX
“Drug Therapy in CF: Treating Today’s Problems while Investing in the Future” Robert Kuhn, PharmD, University of Kentucky College of Pharmacy, Lexington, KY
“A Sister’s Story: My Path to Becoming a CF Nurse” Ronni Wetmore, RN, Adult Cystic Fibrosis Center, Jacksonville, FL
Early Bird Registration on or before 7/1/09: $150 per person
Regular Registration after 7/1/09: $175 per person
All meals included
Precautions to avoid cross-infection are rigorously followed by CFRI and hotel staff
Scholarships are available for eligible applicants
Significant hotel room discounts via CFRI’s web site: www.cfri.org
$97 per night room rate at the Sofitel San
Francisco Bay
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Who can Come: Teens and adults 15 years and older with cystic fibrosis, their family members, friends and health care providers
Purpose of the Day Retreat: The retreat provides a safe and welcoming environment aimed at enhancing positive coping skills, social support and education for people who share common experiences with CF.
What We Do: Activities that promote health include daily exercise, arts and crafts, rap sessions, and educational workshops with guest speakers. Fun group-bonding activities include a talent show, games, and just hanging out getting to know others.
Cost: $65 per person for the entire week. Daily fees are $15 per day for visitors or $10 per meal for those who drop in for a meal only. Overnight accommodations and transportation are the responsibility of participants. Scholarships are available for those unable to pay fees.
Safety: All people with CF are required to comply with cross infection behavioral precautions. A medical advisor is available at all times, and volunteers are available to assist with respiratory treatments. Participants with CF must obtain a sputum culture before the start of the retreat.
People who have ever cultured Burkholderia cepacia, cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past 2 years, or are currently resistant to all antibiotics will not be allowed to attend the retreat.
We’d Love To See You There!
For An Application, Please Contact:
Cystic Fibrosis Research, Inc.
2672 Bayshore Parkway, Suite 520, Mountain View, CA 94043
Phone: (650) 404-9975/ Fax: (650) 404-9981
cfri@cfri.org www.cfri.org
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